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Tuesday, August 4, 2009

He Doesn't Have Celiac!

Yay! Sean's doctor just called with the initial lab results and he does NOT have celiac disease! She also feels he does NOT have reflux and doesn't need to be on Prevacid for it.

However, the red spot in his stomach tested positive for a bacteria infection called Hemicobactor Pylori. The treatment is a course of 2 antibiotics taken with Prevacid for 10 days 14 days. I'm not sure if he will need some sort of repeat test (blood work?) to see if it clears up. She said it appears to be in the early stages so hopefully we can treat it easily.

I asked her if she felt she needed to see him again or doing any other testing to look for physical causes for his feeding issues and she said no. She thinks it is something he will have to overcome thru feeding therapy. Sigh.

While I am somewhat disappointed that there wasn't a clear medical answer found, I guess I am also relieved that he doesn't have a life-long disease. The thought of living with those restrictions was overwhelming.

I guess we are back to square one- praying for him to overcome these aversions and encouraging his therapy. Thanks for everyone thoughts, prayers and advice.

Edited to add: I just picked up his prescriptions from the pharmacy and he is actually taking 2 different antibiotics 2x a day and Prevacid 1x a day for a course of 14 days. Wow! That will be fun.

12 comments:

  1. That is great news! But knowing there is no quick fix is not fun either. Hang in there!

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  2. That is wonderful that he doesn't have Celiac!

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  3. Glad to hear he doesn't have Celiac. I agree that it is overwhelming to think about.

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  4. Great news! I hope he is able to overcome his aversions soon - eating issues can be so stressful.

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  5. what a relief that he doesn't have celiac, only for the radical changes in diet is hard for the whole family.

    i bet he will feel a whole lot better when the h. pylori is done and over with!

    be patient, he will slowly get over some of his foodie things, we too are still dealing w/ some texture issues, some i think will be a lifetime problem.

    this past year when wyatt was in school, he started eating golfish crackers because his classmates were eating them. up until then, he had no interest in them.

    ps - that was great that you saw the bunny, even my mom commented and didn't say anything about the bunny!

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  6. ps - i am really enjoying your blog :)

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  7. so glad he doesnt have CD! We went through all that too two years ago.

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  8. WOW what GREAT news!!! I am soooo hapy he doesn't have Celiac. I will help you work on him with the food issue. Love to All. NANA

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  9. I am glad he doesn't have celiac as that would be hard to manage. I worked at a health food store pre maternity. Make sure to get probiotics after all the antibiotics. Best of luck with feeding. I hear ya on the big "Sigh". I know it can be tough with the feeding issues.

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  10. So glad to hear he does not have celiac! Hope he takes the meds better than anticipated (maybe mixed in the food he likes?)

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  11. Good news. Have fun with the meds. and good luck with the feeding issues.

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